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19 人回報1 年前
轉傳分享:失智症者的願望清單(Wish Lists)

我美國的同事,今年85歲,沒有失智症,但收集了這份失智症的願望清單(Wish Lists)。他是印度人,第一代來美國。他把所有兄弟姊妹與父母都接來美國。整個家族已經超過一百多人在美國。家族裏有非常多的醫生,他們也常有討論。

我讓ChatGPT 把他的這份願望清單翻譯成中文,便利大家參考。如果你很忙,只要看完1a那句話,就值回你的時間。

【失智的人的願望淸單】

如果我得了失智症,我希望我的家人能把這份願望清單掛在我住的地方的牆上。我希望他們能記得這些事情。

1a. 每次你走進房間時,請先介紹自己。例如:「嗨,爸爸——我是 Sujatha(蘇賈莎)、Raj(拉傑)或 Shalini(莎莉妮)。」
千萬不要問:「你知道我是誰嗎?」 那樣會讓我感到焦慮。

1. 如果我得了失智症,我希望我的朋友和家人能接納我所感受到的現實。

2. 如果我認為我的配偶還在世,或者我以為我們正要去哥哥 Chitti 家吃晚餐,請讓我相信這些事。這樣我會開心得多。

3. 如果我得了失智症,請不要和我爭論你所認為的事實和我所相信的事實有什麼不同。

4. 如果我得了失智症,而我認不出你是誰,請不要往心裡去。我的時間感是混亂的。

5. 如果我得了失智症,已經不會使用餐具,請不要馬上餵我吃飯。請試著讓我改成「手指食物飲食」(“finger-food diet” 用手拿食物吃 ),看我是否還能自己進食。我習慣這樣,那是我童年時的方式。

6. 如果我得了失智症,感到悲傷或焦慮,請握著我的手並傾聽。不要告訴我這些情緒是沒有道理的。

7. 如果我得了失智症,我不想被當作小孩對待。請像對待成年人一樣與我說話。

8. 如果我得了失智症,我仍然希望能享受我一直喜愛的事物。請幫助我找到方式去運動、閱讀、與家人朋友見面。

9. 如果我得了失智症,請邀請我說一段過去的故事給你聽。

10. 如果我得了失智症,出現激動或焦躁的情緒,請花時間找出我不安的原因。

11. 如果我得了失智症,請用你希望被對待的方式來對待我。

12. 如果我得了失智症,請確保家裡常備零食。即使是現在,我若沒吃東西會發脾氣;若我有失智症,可能無法表達我需要什麼。

13. 如果我得了失智症,請不要當著我的面談論我,就好像我不在房間裡一樣。

14. 如果我得了失智症,而你無法每天24小時、一週7天照顧我,請不要自責。這不是你的錯,你已經盡力了。請找人幫忙,或替我選一個好的照護場所,那或許可以稱為「天堂」。

15. 如果我得了失智症,住進失智照護機構,請常常來探望我。

16. 如果我得了失智症,把人名、事件或地點搞混了,請不要表現出煩躁。請深呼吸。這不是我的錯。

17. 如果我得了失智症,請確保我隨時能聽到我喜歡的音樂,也請確保我有戴助聽器。我喜歡「提亞加拉賈的克爾坦歌曲」和「甘塔沙拉的宗教詠唱」。

18. 如果我得了失智症,喜歡撿起物品帶來帶去,請幫我把那些東西放回原處。我不是小偷,請不要這樣對待我。

19. 如果我得了失智症,請不要把我排除在派對和家庭聚會之外。我一生都喜歡那樣的時光。

20. 如果我得了失智症,請記得我仍然喜歡擁抱或握手。

21. 如果我得了失智症,請記得我依然是你所熟悉與愛著的那個人。



可轉貼分享這段文字,紀念你所認識或曾經認識、罹患失智症的人。也獻給所有正在與失智症或阿茲海默症奮戰的親友們。

六月是阿茲海默症關懷月——當這個疾病出現在你家人身上時,你會比任何時候都更深刻地意識到它的存在!

English version.

If I get dementia, I’d like my family to hang this wish list up on the wall where I live. I want them to remember these things.

1a. Every time you enter the room announce yourself. “Hi Dad- it’s Sujatha or Raj or Shalini.”
NEVER ask- Do you know who I am??? That causes anxiety.

1. If I get dementia, I want my friends and family to embrace my reality.

2. If I think my spouse is still alive, or if I think we’re visiting my Brother, Chitti for dinner, let me believe those things. I’ll be much happier for it.

3. If I get dementia, don’t argue with me about what is true for me versus what is true for you.

4. If I get dementia, and I am not sure who you are, do not take it personally. My timeline is confusing to me.

5. If I get dementia, and can no longer use utensils, do not start feeding me. Instead, switch me to a finger-food diet, and see if I can still feed myself. I am used to it. That is what I did at my childhood.

6. If I get dementia, and I lam sad or anxious, hold my hand and listen. Do not tell me that my feelings are unfounded.

7. If I get dementia, I don’t want to be treated like a child. Talk to me like the adult that I am.

8. If I get dementia, I still want to enjoy the things that I’ve always enjoyed. Help me find a way to exercise, read, and visit with my family and friends.

9. If I get dementia, ask me to tell you a story from my past.

10. If I get dementia, and I become agitated, take the time to figure out what is bothering me.

11. If I get dementia, treat me the way that you would want to be treated.

12. If I get dementia, make sure that there are plenty of snacks for me in the house. Even now if I don’t eat I get angry, and if I have dementia, I may have trouble explaining what I need.

13. If I get dementia, don’t talk about me as if I’m not in the room.

14. If I get dementia, don’t feel guilty if you cannot care for me 24 hours a day, 7 days a week. It’s not your fault, and you’ve done your best. Find someone who can help you, or choose a great new place for me to live, that may be what is called “Heaven”.

15. If I get dementia, and I live in a dementia care community, please visit me often.

16. If I get dementia, don’t act frustrated if I mix up names, events, or places. Take a deep breath. It’s not my fault.

17. If I get dementia, make sure I always have my favorite music playing within earshot, make sure I have hearing aids. I like “Thyagaraja kirtanas, and Ghantasala’s religious renderings.

18. If I get dementia, and I like to pick up items and carry them around, help me return those items to their original place. I am not a thief and do not treat me like one.

19. If I get dementia, don’t exclude me from parties and family gatherings. I loved them all my life.

20. If I get dementia, know that I still like receiving hugs or handshakes.

21. If I get dementia, remember that I am still the person you know and love.”

ᴄᴏᴘʏ ᴀɴᴅ ᴘᴀsᴛᴇ in Honor of someone you know or knew who has dementia. In Honor of all those I know and love and lost who are fighting Dementia/Alzheimer’s.

June is Alzheimer’s Awareness Month…you’re never more aware than when this disease hits your family!

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About 1 year into the business we chose to offer additional services above and beyond just mail and it was this decision that would prove to be our failure. As a team, we didn’t fully understand how diversifying our focus would negatively impact our effectiveness. I tell everyone who asks for advice to pick a problem you can solve and focus on solving it well. Successful entrepreneurs have one thing in common — they never give up. What is one business idea that you’re willing to give away to our readers? I like ideas that take subject knowledge and find a way to productize it. One idea I had was to do this for athletic departments in D1 schools, so they could crowdsource from their athletes, managers, and students the creation of social marketing content. They could then manage it from a centrally controllable compliance system. Or Plastics !! Invest in Plastics (god I’m old) What is the best $100 you recently spent? What and why? Money spent on experiences, dinner with my wife or friends, or money that helps someone. Recently, since we are living across the country from each other, it would be dinner with my wife the last time I was at home in Las Vegas. What is one piece of software or a web service that helps you be productive? How do you use it? Slack. It helps our entire team communicate. What is the one book that you recommend our community should read and why? “Start With Why” by Simon Sinek. It helps you think about what you are building in a way that really focuses on how it will be consumed by those whom you are selling it to. What is your favorite quote? “Success consists of going from failure to failure without loss of enthusiasm.” -Winston Churchill Tell us about one friend or acquaintance of yours who we should interview on IdeaMensch. Who are they, what are they doing and what’s their email address? I actually have two Nick Jones, Nick and I started what was our first real company together Load Ltd along with my current business partner Paul Korol. Nick’s is currently working on a great project focused on personal and affinity based content creation called JRNL.com, they have recently been through boom Startup a SaaS focused startup accelerator in Salt Lake City and have just completed a seed round of funding. John Njoku, John is working on a great project RentHub.com, which is at the intersection of Multifamily Residential Realestate and Big Data Analytics. RentHub has some huge clients such as StarWood capital and The Lefrak Organization and has recently completed the Elmspring accelerator based in Chicago. Contact : https://www.ns8.com/ LinkedIn: https://www.linkedin.com/company/ns8 Facebook: https://www.facebook.com/ns8inc Twitter: @ns8inc 287Share Tweet 66Share Filed Under: Interviews, Software, Technology Tagged With: Herndon, Virginia https://ideamensch.com/adam-rogas/
    1 人回報1 則回應9 年前
  • 你好,我們有收到一封訊息,想向你們求證是否為真,謝謝。內容如下: I am interested in your advertised property but first, I have something very confidential to discuss with you. I am a U.S soldier assigned to be protecting the Red Cross officials here in Aleppo. I have the sum of $9.2 million in two medium sized boxes that were handed over to me by a Syrian business man for safekeeping. Unfortunately, this man and his family were accidentally killed in a bombardment by Russian forces in Aleppo. He was a very successful business man dealing on gold dust/bars before his death. Because of my closeness to him, he brought the money in a box here for me to assist him store in the Red Cross storage warehouse and he had no knowledge that he and his family were going to die. The entire money is in cash and stacked in a box. For safety reasons, I cannot continue to keep this huge sum of money here. I want to transfer this fund to you as the beneficiary through the Red Cross diplomatic courier services because I don't know where to keep this fund again here in Syria. I just need your acceptance and I will start the courier process. For your sincere assistance, I will give you 20% of the money which is $1.84 million. I want to invest the fund in real estate or any other sector which you can recommend. I cannot transfer this fund through bank because here, banks are controlled by government forces which make it impossible too because of the sanction imposed on the country by United Nations. I can only send this money out of here as a registered diplomatic cargo and transported by a Red Cross jet which flies in and out of here two times a week. Where I am now we can only communicate through the Red Cross communication facility which only permits me to send Emails and we can't make phone calls now because in the area which I am presently, phone communication network was blocked by the government. Please if you are interested in helping me I will give to you the complete details you need for us to carry out this transaction successfully. I think it will be good to diversify our investment. Apart from real estate we can as well invest in other sectors. As for me I think it is good to first invest in real estate. I would owe you my life if you help me. I wait for your fast response so I can give you further details upon hearing from you. Regards, Kenny
    1 人回報1 則回應9 年前
  • You there. Second desk. Blue jacket. What is your name? My name is Alexis. Alexis! Please leave my lecture room. I don't want to see you at one of my lectures ever again. I don't understand. I am not going to ask a second time. Thank you. Why are there laws? What are laws for? Anyone? Social order? To protect the person's personal rights. So that you can rely on the government? Justice? Thank you. Tell me, was I unfair to your classmate just now? Indeed I was. So, why didn't any of you protest? Why didn't any of you try and stop me? Why didn't you want to prevent this injustice? You see, what you have just learnt you wouldn't have understood in a thousand hours of lectures unless you lived it. You didn't say anything because you weren't affected yourself. And this attitude speaks against you. And against life. You think it doesn't concern you, so it's none of your business? Well, I'm here to say. If you don't help bring about justice, then one day you too may experience injustice. And there will be nobody there to stand before you. Truth and justice lives through us all and we must fight for it. Because in life and work, we often live next to each other, but not with each other. We console ourselves that the problems of others are nothing to do with us, none of our business. And we go home glad at night that we're spared, but it's about standing up for each other. Every day an injustice happens in business, sports or on the tram. Relying on someone else to take care of it is not good enough. It is our duty to be there for others, to speak up for others when they cannot. I am here to teach you the power of your voice. I want you to learn critical thinking to empower you to stand up for what is right. Even if it means going against what everyone else is doing. Let's begin.
    3 人回報1 則回應3 年前
  • You there. Second desk. Blue jacket. What is your name? My name is Alexis. Alexis! Please leave my lecture room. I don't want to see you at one of my lectures ever again. I don't understand. I am not going to ask a second time. Thank you. Why are there laws? What are laws for? Anyone? Social order. To protect a person's personal rights. So that you can rely on the government. Justice. Thank you. Tell me, was I unfair to your classmate just now? Indeed I was. So, why didn't any of you protest? Why didn't any of you try and stop me? Why didn't you want to prevent this injustice? You see, what you have just learnt you wouldn't have understood in a thousand hours of lectures unless you lived it. You didn't say anything because you weren't affected yourself. And this attitude speaks against you. And against life. You think it doesn't concern you so it's none of your business? Well I'm here to say. If you don't help bring about justice, then one day you too may experience injustice. And there will be nobody there to stand before you. Truth and justice lives through us all and we must fight for it. Because in life and work we often live next to each other but not with each other. We console ourselves that the problems of others are nothing to do with us. None of our business. And we go home glad at night that we're spared but it's about standing up for each other. Every day an injustice happens in business, sports or on the tram. Relying on someone else to take care of it is not good enough. It is our duty to be there for others, to speak up for others when they cannot. I am here to teach you the power of your voice. I want you to learn critical thinking to empower you to stand up for what is right. Even if it means going against what everyone else is doing. Let's begin.
    1 人回報1 則回應3 年前